Everything seems to be moving along smoothly with amazing progress on what is to be a two-year study regarding chronic cerebrospinal venous insufficiency (CCSVI) and multiple sclerosis (MS) and the 18th month progress has now been reported.
This huge study has more than $2 million dollars committed by our National MS Society and The MS Society of Canada.
The 64th Annual Meeting of the American Academy of Neurology is going to be held in April this year and two abstracts were submitted for consideration, so it looks as if the broad range of investigators (from neurology to vascular surgery to interventional radiology) are attempting to actually put to rest, one way or the other, the CCSVI drama.
Irene Deerwester of Lima has long been a proponent of CCSVI even though she herself has not been able to have it done, “because of various different personal and money factors” but has a goal to be able to “do something next year at the latest”. Sierra Blankenship, also of Lima, has been more cautious when it comes to it, “I am one of those that likes to wait a bit before opening any doors,” she said.
“I haven’t had as many difficulties as so many others, so I imagine that is why I am ok with waiting right now.”
Not only does this study involve the range of investigators that it does, but it will also have involved more than 1300 patients who have anyone of the types of MS; and the magnitude of this type of study is incredible also, in part, because of how all the CCSVI drama started.
Research has already included Doppler ultrasound, like what Dr. Zamboni had used, along with other imaging technologies, MR venography, catheter venography, MRIs and “other” clinical measures on 800 patients.
It has been an incredible battle for the many, like Irene, who have been wanting to try CCSVI, but haven’t been able to due to funds. Insurances won’t cover what is deemed “experimental treatment for MS” and it is so very important that patients get after-care once the procedure is done. Many deaths have proved this.
Right now, Dayton Interventional Radiology is the only center in Ohio that is doing CCSVI and Irene would be happy to hear that they are wishing to get the word out to those with MS that they have been approved to enroll and participate in a trial regarding CCSVI through the Hubbard Foundation.
The Hubbard Foundation is all about CCSVI, any vascular component of neurological diseases really, but at this point in time, that would be CCSVI, but has stated, “While at this point we don’t know if there will be any synergy with our focus on meditation and consciousness, we can’t help but believe that at least part of the healing of MS and other neurological diseases involves diet and life-style change such as are found in meditation, Ayur-Vedic and oriental medicine.”
Information for those who wish to participate in Dayton Interventional Radiology’s study can be found at their website, through email at DaytonCCSVI@Yahoo.Com or by phone at 937-387-7094.
The seven teams that are at the 18th month mile-post study funded by the NMSS and Canada’s are going to, and some already have, shared information so that all current projects can continue to roll along as smoothly as possible, as their results are to be the guide for this years clinical trial that is set to launch in the spring.
A clinical trial that will also be funded by the National MS Society and The MS Society of Canada.
Sources: nationalmssociety.org/news/news-detail/index.aspx?nid=5898; daytonir.com/; msra.org.au/msif-ccsvi-research-bulletin-january-2012
For more info: for those who live in Lima, Ohio, the Northwestern Ohio MS Chaptercan be reached at: 401 Tomahawk Drive, Maumee, OH at (419) 897-7263. They are located approximately an hour and a half from Lima, Ohio and 45 minutes from Findlay, Ohio. For directions please click here at Bing Maps.
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